Thanks for taking the time to visit us! The fact that you're reading this is a great start. As with so many things, facing up to something you know little about can be a daunting prospect. However, you are not alone. There are thousands of young people in the UK living with ataxia and for the first time, Ataxia UK has been able to coordinate a platform where young people can all meet.

What we do

Ataxia: 16-30 is an online community of support and advice, designed at engaging more young people who have ataxia with one another, as well as offering practical guidance. Across the website you will find a mixture of tips and advice from other young people, as well as some handy directions for where to look if you find yourself in need of help. This help can come in many shapes and forms but we feel the best way to understand your ataxia is by hearing the stories of other people. People who know exactly what you are going through, who can offer support and who can be unashamedly honest with one another!

What you can do

Blog for us: write your story, share your advice or show a creative piece of work. 

Tag us in social media: use the hashtag #ataxia or our handle @AtaxiaUK to spread the word!

Or join us for any of the below events and projects that run throughout the year:

The annual Chill Out

Each October, the group meet up as part of Ataxia UK's Annual Conference. This is where you'll find specialist information suited to your age range, such as entering employment and further education, mental wellbeing and advice on how to manage your ataxia. You can read more about the 16-30's conference on our events page.

Facebook group

We have also created the Ataxia: 16-30 Facebook page. This private group is exclusively for members of the Ataxia: 16-30 community. Anything a member posts on the group can only be seen by the other members, so you can be completely honest! To join the group, drop Steph Marley an email at [email protected] and she'll send you an invite to join.

Become an Ataxia UK Ambassador

Our 16-30's group members get first dibs at joining the new Ataxia UK Ambassadors project, training people to become representatives of the charity at events, with the press and online. Ambassadors will receive media training with our contact at the BBC; have their written work published through our channels, and have the opportunity to take over the Ataxia UK social media channels from time to time. Interested? Read about how to become an Ataxia UK Ambassador

If you would like to find out more about ataxia, or the work of Ataxia UK, please do feel free to visit where you find a whole host of information! After some advice? Why not head over to our advice page.

Charlotte and Aila at the 16-30's Chill Out